Author: wrekehavoc

this week in bloodland

this week in bloodland

when we last left our hero (read: me), she had intrepidly given blood in order to allow the immunologist in scenic bethesda check on her antibody production.

update: the blood came back. (ew. i mean, the report came back.) in short: my lymphocytes are good, but i am low on antibodies for the representative and collective yuckiness known as diptheria, tetanus, and pneumococcus (spelling, anyone?). this may just be because i am in need of booster shots (yay?) or because, in fact, i stink at creating antibodies. because just throwing me on IViG (read: gammaglobulin) would negate any ability to tease this info out; and since i am not currently in an acutely bad state (read: in the hospital and in danger), we are taking the time to find out.

thus, in a measure that will make my kids laugh at me (and probably make me cry), i have to go get booster shots for DT and pneumoccocus (the pneumonia stuff) next week. (i feel so young again.) then, in a few weeks, we get to repeat the blood tests and find out whether i am maintaining a good level of antibodies (yay!) or whether i continue to display crappy antibody production (boo!) if the latter, then i am potentially a candidate for gammaglobulin for eons to come, which really bites. if the former, it might just be that i am low on one of the immunoglobulins (IGa, for you trivia buffs out there), in which case, maybe, just maybe, i can join one portion of the population who are naturally low in IGa (and who, i’m sure, taste like chicken 😉 and are just quite a sickly crew. no treatment; no answers; just punt, i guess.

to boot, i also need my flu shot. my brother recommended that BC NOT do the flu mist, as the live vaccine might be dangerous to me. darn; i told her that we’d try the mist this year — last year, several nurses, a doctor, and i couldn’t pull her out from under the doctor’s desk. (i don’t think she’ll be getting the shot this year, either, huh.)

points will be deducted from anyone who makes any “shot in the arm” jokes in my presence 😉

take THAT, you evil monster

take THAT, you evil monster

::doing happy dance::
204, 204, my platelets are kicking ass, 204, i’m still in remission, i’m still in remission, 204, 204!

i’ve been so incredibly upset for the past week or so. i’ve been feeling a little off, and it didn’t help that i was taking an antibiotic that was probably giving me an allergic reaction. finally, i took DH’s advice and decided to move up my hematology appointment. i was a bit nervous, but it is much better to face stuff and get it over with than to sit and stew about it. or, as tom petty always sings, “the waiting is the hardest part.”

so i went. i always park around the corner of the hospital (it galls me to pay $4 every time i go there, and i don’t mind the hike, anyway). i generally am looking at the ground when i walk; i’ve been this way since high school, i think. dunno why. i don’t really think it’s a self-esteem issue as much as it is a poor posture issue. anyway, as i was walking and looking down, i found a penny, heads up. a good luck penny. these days, i take my lucky signs as i find them. and since my platelets have been on a nosedive for the past few months; and since last month, i was only 1K above normal, i needed all the luck i could get.

so the lab tech drew my blood and took my vitals and walked out. because i am such a cheery person, i was busy reading a pamphlet on a conference about all the magical things they can do with stem cells. i don’t travel in those oncological circles (mercifully), but i guess i am always a little fascinated by that stuff. when BC was born, i donated her stem cells to an NIH project. they told me that while they couldn’t guarantee i would ever get her exact stem cells, they would rustle some up for us right quick should anyone in our family ever need them. (here’s hoping we don’t.) but i liked the fact that while we were being blessed with a healthy baby, someone else out there might be blessed with a chance at some good health. (i absolutely do not get those people who plant the placenta after their child is born. what the hell do they think will happen – a placenta tree? eww. and what a waste when so many people might actually benefit from this stuff.) so i was reading and reading until the tech came in.

“got your results here.” i took the now-familiar paper from her hands. “you got some good numbers today!” she said.

i burst into tears. i hugged her. 204 rocks. i mean, super-collosal, better than fresh-air-through-your-hair-while-you-ride-a-cantering-horse-on-a-caribbean-isle-travel-commercial rocks. i was still crying when katrina, the nurse practitioner, walked in. she hadn’t seen my yellow paper yet and was worried that the shit had hit the fan. i assured her, it hadn’t. these were happy tears. this is a hematology/oncology office, so she was thrilled to have some happy tears. i bet they don’t get a lot of them in there.

our theory is that while my strep isn’t related to my platelets, perhaps my body had been weakened by fighting the strep, which, in turn, knocked my platelets around. anyway, next week, i get to see an immunologist in bethesda. that should be a kick in the ass.

but today, i feel pretty damn invincible. like play-the-lottery invincible. and nothing, and nobody, will take that away from me.

i’m superchick.

a friend is a friend

a friend is a friend

i’m making a new friend.

this shouldn’t seem like a big deal; BC gets her extreme friendliness from somewhere (and it isn’t from her dad, you know 😉 but living here, in the people’s republic, i meet plenty of nice people who i enjoy, but not a ton of people i really connect with, people who really seem to be in a similar mindplace that i am in, people who don’t judge me for being, well, a little off-kilter. i’m blessed that i have some very close friends who never make me explain, never need explanations, pulling information from the strands i weave around me and making sense out of it. and liking me in spite of it. some know me from childhood; some from college; fewer still from my adult life. i just don’t get to see them all that much.

it’s not that i find it hard to connect with people; it’s just that making a new friend requires effort, requires time, requires care. many of these things feel like they are in short supply at present on my part. it’s not that i am unwilling; but when you’re a mom, you really don’t have time to undertake these things; and once you finally muster them up and gather them all together, your expectations can still take a tremendous nosedive when the person fails in one way or another. i don’t have the luxury of time to fail. anyway, i have always expected too much of other people. very few ever rise to the level i want or need, and so over time, i have just learned to appreciate the thin veneer of cordiality as a connection in and of itself. it satisfies, if only temporarily.

i often wonder what it would be like if i lived near my close friends, our very own mayberry or wisteria lane. would we grow to hate each other? would we grow together? would we still provide the level of comfort to each other as we can from a distance? because we don’t see each other often, we can still reach back easily and picture each other as a teen, or as a college student, or in some other way. maybe seeing someone each day would push that recollection out of the fore.

i’m probably a pretty crappy friend at this stage of my life. i strive to balance my life, my family’s life, with everything else. there are some people i have met in the last year or so who i would love to get to know further. and it is so hard to get schedules and stars aligning in a way that would make things work. people try with me, and i just struggle to get things together. i’m tired of schedules running our lives. i wish sometimes it could all be so spontaneous, the way it was when i was younger. “yeah, sure, c’mon over — you bring the beer and i’ll order a pizza and we’ll hang out.” that sort of thing. but that seems to be so elusive now.

and still i rise. i am an optimist. (contrary to the people who voted me high school class pessimist as a joke.) right off the bat, this new person and i seem to get each other, she and i. today i feel good about the future.

just because i am making a friend.

hope you had a hell of a piss, arnold

hope you had a hell of a piss, arnold

note to DH: you understand the subject line 😉 (and the hint for everyone else.)

DH had to go away on business. he doesn’t do it all that often, as he knows we all miss him too much when he goes. but this morning, he left for a business trip to The City (which for anyone who doesn’t know what means, Manhattan.) BC, who had been cheering for days at the thought of her dad’s trip (“now he won’t be here to yell at me!”) was wailing and moaning the loudest of anyone: “daddy, don’t leeeeeeeeeeeeeeave me!” being the biggest boohoo on the planet, i was finding it hard not to tear up seeing her in such grief. DH, though sensitive and kind to his DD, was able to tear himself away, leaving me with little miss teary-deary and jools, who was more interested in dora the explorer’s computer game on nick jr.com. i spent some time explaining how daddy doesn’t go away all that often and sometimes, he just has to. she said the only thing that would make her feel better would be talking to grandma, so i even got grandma and grandpa on the phone (at 7:30 a.m., which makes them pretty damn good sports in my book). no dice. finally, i resorted to the one thing i knew would snap her out of her funk:

curious george. (or, as he is fondly known in this house, curious jorge.)

yep. i resorted to television. once again, i am a bad mom. but i knew that she really wouldn’t snap out of it unless something really diversionary came her way. (and of course, i am secretly in love with the man in the yellow hat.)

it worked.

if i weren’t so pissed off at WETA for cancelling my beloved addiction, eastenders, i would send them money for this.

everyone had a good day at school; gymnastics class was fine. and then, the deluge. it monsooned here, just as i went to pick BC up with jools in tow. it was pissing down rain so hard, i could not see. we got home and had an hors d’oeuvre picnic on the family room floor, complete with BC and i trading off making up a story that was a little departure from the hansel and gretel tale of yore. it was actually fun. i got the kids showered, i read some stories (including my aborted attempt to read the spanish book jools took out from the school library today; BC was actually translating, but jools lost interest.)

we called DH, and he was on a ferry in the east river on his way to see a yankees game. i’m not thrilled about this on so many counts.

i wish he’d come home already.

wrong day to premiere the new mascara

wrong day to premiere the new mascara

this morning was jools’ first day at montessori at the big school (AKA BC’s elementary school.) i had prepped BC by telling her that we needed to stay upbeat and supportive (which of course didn’t stop her from bursting into tears on the ride over when she heard that jools would start his experience with art class taught by a teacher who freaks BC out — she cried because she was so worried that she would be mean to him and that he would get in trouble or would cry). we made cinnamon buns (BC ate the tops off two of them; jools refused to eat them), readied ourselves, and we were off.

why did i even worry? the dude walked in like a champ. he greeted his teacher, and we dropped stuff off in his cubby, though he insisted on keeping his backpack with him for lineup. he wanted to look like all the big kids, y’know. BC and colleen joined jools on the montessori line for a bit, then i said goodbye to BC and told her that she had to go stand in line without me because i had to hang with jools. she understood, fortunately. jools couldn’t sit still and visited the boys room [b]three times[/b] before his teacher picked them up. he was fascinated by the urinal in the boys room (i peeked to make sure he was ok in there; fret not — no other kids were in the bathroom). fortunately, he didn’t ask me anything about it, as i am not exactly an expert on urinal etiquette.

and then, when we got on line, he looked up at me with his puppy brown eyes and said: “you can go to work now.” i was dismissed.

i stayed until his teacher arrived, but i didn’t walk him in to his class the way other parents walked teary youngsters in (and there were several boohooey kids on his line).

then i stood there and teared up as he walked away.

bad mom that i am, i forgot his blanky. later in the day, i had to return and be the stealth mom, slipping the blanky into his cubby without his knowing it. nazia, one of our friends who works in the lunchroom and in extended day, stopped me as i crept by. “julian has lots of big smiles today,” she said happily. “i saw him earlier, and he looked happy.” my heart leapt.

good thing i brought the blanky. when i arrived to pick him and BC up (note: my THIRD trip to the school today), the man who is in charge of the montessori program walked the children past me [i]sans jools[/i]. huh? “you’d better go into the classroom,” he advised. “julian is crashed out on the beanbag chair. he started napping, but then the fire alarm went off. but he’s out again.” his class doesn’t actually nap. but my boy does. i walked to his class and was greeted by the kindergarten girls, who all shooshed me and pointed to my little boy, curled up and sweaty on the beanbag chair. already, the little girls love little jools (AKA LL Cool J for “the ladies love cool jools”). i laughed, bent down, and picked up my sleepy boy.

i nearly made it outside with him when he suddenly jerked his head up like a birddog and barked: “where’s kira?” he doesn’t miss a beat that one. a minute or two later and we saw BC walking toward us, all smiles for her brother. “how was your first day!” she asked him. she was so concerned about him. i tell you, that girl likes to discuss at length how her brother’s arrival basically has ruined her existence; but deep-down, she adores him. and he her. while such occasions are fleeting, i treasure them and lock them away for those moments when i feel like i am failing life.

they don’t last long before someone is smacking someone in the head and screaming, “mommmmmmmmm!”

from the "i have to write this down" department

from the "i have to write this down" department

i know, i know. it’s rosh hashanah AND it’s shabbat, and yet here i am, writing (well, typing) something down. but i don’t want to forget this nugget.

BC loves the song loves me like a rock. she was singing it today, though she changed the lyrics a bit:

When I was grown to be a man (grown to be a man)
And the devil would call my name (grown to be a man)
I’d say now who do,
Who do you think you’re fooling? (grown to be a man)
I’m a constipated man (grown to be a man)

she kept asking me why i couldn’t stop laughing. when i explained to her that she was singing that the man couldn’t poop, she couldn’t stop giggling, either.

yep. we’re a highbrow family, we is.

mystery solved

mystery solved

i hate cliffhangers. i really do. and i don’t like to leave people hanging. so, in deference to the two people who read this 😉 (and i know you’re out there somewhere, as i can see statistics on the left-hand-side that shows that someone is out there besides the usual suspects), here’s the continued joy that is my life.

1) DH just came home from work sick. hello, single parenthood.

2) Apparently, i have strep based on a culture from the Dr’s office.

3) oh. remember that little phone call i missed yesterday? the one that caused me to cry, whine, and eat massive quantities of guittards milk chocolate chips, throwing caution to the wind and weight watchers points out the window? well, i was right. that lovely nurse practitioner was calling not to tell me that she loved me but that two of my three immunoglobulins are low. as my brothuh-the-doctuh points out, 1/3 of the population is low in one of them (IGA), and the other one (IGG) is low but not as low as his was, making a comparison of his condition not quite appropriate with mine). one (IGM) is normal — hey, that’s a positive!

yep, it’s a hap-hap-happy day around here. i’ll be visiting an immunologist in bethesda who specializes in autoimmune diseases on oct. 12. it was nice that the receptionist really tried to fit me in as quickly as she could, though parking is apparently a nightmare there (as she tells me). i can hardly wait. oh well. as long as i get home in time to pick up the wee bairn…

so, what’s a girl to do? well, tomorrow is jools’ last day at his old beloved school, so i am baking homemade chocolate chip cookies and making a CD of his greatest hits to give to all of his teachers.

here’s hoping i actually spare some of that cookie dough.

caution: pity party in progress

caution: pity party in progress

today was a wednesday morning when i make myself scarce because the cleaning ladies are here and i don’t like to get in their way. i spent some more time on my laptop, looking at potential places to take a vacation. i’d like to go away somewhere — anywhere — where i don’t have to cook, don’t have to clean, don’t have to focus on anything but having fun with my family. i haven’t been to jamaica in nearly 10 years. i haven’t been to london in nearly 10 years. i haven’t been too many places since having children. i don’t regret that, of course, but i think they are getting to ages where they might enjoy being in different places, too. of course, all of these pipe dreams cost money. (what’s powerball at today?)

so i came home from my temporary exile. i saw a cleaning lady — i didn’t see any others — so i grabbed my laptop and headed for BC’s room, where i worked on my novel some more. when the lady left at 11:30, i came out and headed for the answering machine. one message was from the nurse practitioner at the hematologist’s office.

now, this lady is a wonderful, wonderful lady. she saw me at my bitchy, cranky, sickliest worst, and still, she is so sweet to me.  but she only calls when blood tests come back and something is off. like the time when she called to tell me that i was rather iron-poor, and perhaps we ought to check into that a little.

now, i know that this month, my doctor sent my blood away (a weird image, i know) to a place to check on my immunoglobulins. see, he is trying to figure out whether perhaps a virus has something to do with this idiopathic condition i seem to be fighting. my platelets are on the downward trend (i’m only 1k above normal now. i suspect i will be subnormal always, which isn’t so bad. i think in many parts of my life, i am probably subnormal, LOL), and we’re still trying to figure out whether we can discern a cause for all of this mess. i guess i suspected that nothing remarkable would come back, news-wise, and i would go for my monthly doctor’s visit to find that there’s nothing interesting about my blood, virally-speaking.  but i missed the NP’s call. she doesn’t usually call unless something is awry. and now she is gone for the rest of the day.

i guess you could say i am going to stew on this for the rest of the day and night.

i mean, maybe i ought not to think ahead about planning any stupid vacations. i may be in the fucking hospital by the time a vacation would creep up, and then i’d disappoint everyone. i suppose they could go without me, but a) i don’t think the kids would do that voluntarily, and b) that would be too much of a burden for BS.

yesterday, while waiting to pick up BC at school, i met a woman and her four year old son. next week, he starts chemo for brain cancer. boy, i’ve got nothing to cry about in comparison.

i really ought to stop feeling sorry for myself. really. i’m just so frustrated by something that defies explanation. i’m a big cause and effect kind of person. i see a problem: i like to solve it and move on. but there are no answers at present, and there may never be answers.

i’m just so damn mad.

one day, i'll get us kicked out of elementary school

one day, i'll get us kicked out of elementary school

ok.

last week, i had a terrible head cold. i was barely functional. but i had to bring my kids to school, regardless of my health status. i was standing on line, barely conscious, when my friend richard – wow a friend with a URL! came along. his daughter attends the same school as BC. all he did was say, “how are you feeling?”

knee-jerk response that flew out of my mouth: “i feel like shit.” i turn around to see BC’s second-grade teacher make a sour face at me. uh oh. i’m in trouble. i asked richard if i was really loud, as i am not really sure i can hear so well, being stuffed up and all. he replied it was no big deal. but later, when i spoke with BC’s teacher about another matter, she made a weird face at me.

so i resolved to not become known as the potty-mouth mom from hell.

only, i didn’t count on a transformer blowing out the power while i was in the front office today. see, the secretary had just asked me what i needed, and as i opened my mouth to speak, a huge boom erupted and knocked all the power out. out came the principal, the vice-principal, and everyone and their dog. one of the PE teachers came running in and said she had seen sparks on the pole outside one of the teacher’s homes and lines down. i had the sudden realization that i had parked exactly under that pole.

“crap!” i blurted. the principal gave me a look. i apologized, but she didn’t seem to hear me.

thank goodness we have a “do as i say, not as i do” sort of parenting style around here. BC tries to coach me on not cursing. she has instructed me to call people “donkey drivers” instead of alternate animal names. but it hasn’t caught on yet.

it’s hard to break old %#^$^^%$^@ habits.

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Cape Town, South Africa